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“ I wanted to reach out to let you know I received my care package yesterday. THANK YOU! Within a few minutes of just glancing through it yesterday I have seen a lot that grabbed me. I am now sitting here reading the packet. I have it ready to carry every where I go.” - Mickey “I received my package yesterday. What a sweet surprise! I needed a mile on my face. trying to stay strong but sometimes I just break down. What a horrible disease this is. I’m afraid we have a tough road ahead of us. My honey is only 61 years old. No one deserves this!!” -Janice “I just got done reading all the information in your care package, next I will pass this along to my mom and my sister! This is great information and is extremely helpful. I’m eagerly starting the book today too! You both are doing such a wonderful job in spreading awareness and I too plan to do the same in the future. I believe my dad is in the late stage, coincidentally his name is Louie (thankfully spelled different than “screwy Lewy”). My mom had a stroke 3 years ago yet she loves to read so having this in writing is going to help her understand. I’m sure your dad was an amazing dad, it shows in all the work you are doing to help others manage this horrible disease! THANK YOU!” - Lisa “Our package arrived today. Thank you so much. It’s such a wonderful thing you are doing. I truly appreciate all of the information. Hopefully my daughters will find it helpful too. We’re all still trying adjust to this new life we have and it’s hard on all of us but arming ourselves with as knowledge as we can will help.” - Carolyn “I received you box of resources. It’s tremendous what you have done and all that you have put together. This book, is the same one that I had been eyeing. I’m thrilled to have it. I’m flying to see my parents tomorrow and taking these items with e to share. Thank you!!” - Candy “Just got my package. It is a lovely presentation. I am grateful to you. I was just planning on printing out the GEMS chart and to m delight you have included it in your folder. I am excited to share this information with my HomeHelpers. Again, thank you.” - Bo “Good Morning! Thank you again for your care package! I finally sat down and got through some and not only is it valuable information but it helped us, my sisters and I, not feel so alone. Thank you for everything!” - Amy “I just received the care package. I cannot thank you enough! I cried just browsing through the contents, it means so much that you and your family care enough to create all of this to help others. Thank you ever so much. What a wonderful thing you are doing!” - Beth
A package is placed on a porch. A caregiver opens it after a long day. Inside are resources, encouragement, and a reminder that someone understands what they are carrying. That moment matters more than most people realize.
Each care package includes thoughtfully selected resources to educate, guide, and support families navigating Lewy Body Dementia. Recipients receive informational packets, practical caregiving tools, advocacy guidance, a child-friendly book to help younger family members understand the disease, and an in-depth caregiver guide for adults seeking clarity and support.
Families facing Lewy Body Dementia are often carrying far more than others can see. They may be navigating confusing symptoms, sudden changes in behavior or cognition, difficult medical appointments, and the emotional weight of watching someone they love change over time. Many caregivers are doing all of this while trying to keep daily life moving forward.
It is common for families to feel overwhelmed, isolated, and unsure where to turn for reliable guidance. Because Lewy Body Dementia is not always well understood, many people spend months or even years searching for answers, support, and validation.
That is why these care packages matter so deeply. Inside each package is practical information that can help families better understand the road ahead. There are resources that can ease uncertainty, tools that can help caregivers feel more prepared, and encouragement that reminds them they are not facing this alone.
There is also something harder to measure, but equally important.
Sometimes the greatest gift is not just receiving resources. It is knowing that someone, somewhere, understands what you are going through.
Over time, we have received hundreds of messages from families sharing what these packages meant to them.
They tell us:
Those words remind us that support does not have to be grand to be powerful. Sometimes a small gesture creates a lasting impact.
Compassion can start anywhere. A single package mailed from one Midwestern town can reach a family on another continent. A small act of kindness can travel farther than we ever imagine.
What began in Columbia, Missouri has reached families across the globe. This month alone, we mailed nine care packages. In one recent shipment, packages were sent to Scotland, the United Kingdom, Australia, and Canada.
What started as a simple act of support has grown into something much bigger.
It has become a connection.
It has become education.
It has become hope.
If you or someone you know is caring for a loved one with Lewy Body Dementia, we invite you to visit our website and request a care package.
Because no caregiver should have to walk this journey alone. https://lewybodyawareness.org/care-package/
