“ I wanted to reach out to let you know I received my care package yesterday. THANK YOU! Within a few minutes of just glancing through it yesterday I have seen a lot that grabbed me. I am now sitting here reading the packet. I have it ready to carry every where I go.” - Mickey “I received my package yesterday. What a sweet surprise! I needed a mile on my face. trying to stay strong but sometimes I just break down. What a horrible disease this is. I’m afraid we have a tough road ahead of us. My honey is only 61 years old. No one deserves this!!” -Janice “I just got done reading all the information in your care package, next I will pass this along to my mom and my sister! This is great information and is extremely helpful. I’m eagerly starting the book today too! You both are doing such a wonderful job in spreading awareness and I too plan to do the same in the future. I believe my dad is in the late stage, coincidentally his name is Louie (thankfully spelled different than “screwy Lewy”). My mom had a stroke 3 years ago yet she loves to read so having this in writing is going to help her understand. I’m sure your dad was an amazing dad, it shows in all the work you are doing to help others manage this horrible disease! THANK YOU!” - Lisa “Our package arrived today. Thank you so much. It’s such a wonderful thing you are doing. I truly appreciate all of the information. Hopefully my daughters will find it helpful too. We’re all still trying adjust to this new life we have and it’s hard on all of us but arming ourselves with as knowledge as we can will help.” - Carolyn “I received you box of resources. It’s tremendous what you have done and all that you have put together. This book, is the same one that I had been eyeing. I’m thrilled to have it. I’m flying to see my parents tomorrow and taking these items with e to share. Thank you!!” - Candy “Just got my package. It is a lovely presentation. I am grateful to you. I was just planning on printing out the GEMS chart and to m delight you have included it in your folder. I am excited to share this information with my HomeHelpers. Again, thank you.” - Bo “Good Morning! Thank you again for your care package! I finally sat down and got through some and not only is it valuable information but it helped us, my sisters and I, not feel so alone. Thank you for everything!” - Amy “I just received the care package. I cannot thank you enough! I cried just browsing through the contents, it means so much that you and your family care enough to create all of this to help others. Thank you ever so much. What a wonderful thing you are doing!” - Beth

Care Package Impact

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News & Updates

June 19, 2026

The Four Pieces of the Caregiving Puzzle

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May 22, 2026

Shared Language Creates Confidence: Why Understanding the Right Words Matters in Lewy Body Dementia

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May 08, 2026

From Columbia, Missouri to the World: How One Care Package Can Change Everything

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April 24, 2026

What Are Lewy Bodies? Understanding the Name Behind Lewy Body Dementia

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April 16, 2026

The Role of Community: Doctors treat the disease. Community helps families live with it.

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April 03, 2026

Searching for Answers: The Early Journey to a Lewy Body Dementia Diagnosis

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March 19, 2026

Larry Gross Lewy Body Awareness Foundation Commits $60,000 to Research and Student Support at Mizzou

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February 22, 2026

Caring for the caregiver is not optional, it is essential

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January 25, 2026

A Story of Hope, Connection, and the Unseen Impact of Lewy Body Dementia Care Packages

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January 25, 2026

From The Heart, Family Firsts. 

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The Larry Gross Lewy Body Awareness FND is a registered 501(c)3 organization.
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